New platform launched to help stroke survivors and families “understand the science shaping stroke care”

The European Stroke Organisation (ESO)in partnership with the Survivors Honouring Inclusion, Networking and Empowerment (SHINE) Global Stroke Collaborationtoday announced the launch of Stroke Insights, a new online platform designed to translate complex stroke science into clear, trusted and practical information, ensuring stroke survivors and their families can navigate the latest medical research in a more accessible way.

Available at www.strokeinsights.org, the platform presents scientific evidence via clear, plain-language information while maintaining “a strong foundation in research”, as detailed in an ESO press release. It brings scientific expertise together with the perspectives of people with lived experience of stroke, helping to make research more understandable, meaningful, and useful beyond the scientific community.

“Scientific progress has the greatest impact when the knowledge reaches the people whose lives it can improve,” commented ESO president Urs Fischer (Inselspital Bern, Bern, Switzerland). “With Stroke Insights, we take important research beyond scientific journals and conference halls, and make it clear, trustworthy and accessible to everyone affected by stroke. By connecting robust science with lived experience, we can help people better understand new developments and have more informed conversations about prevention, treatment, and recovery.”

The first Stroke Insights content draws on scientific evidence presented at the 2026 European Stroke Organisation Conference (ESOC; 6–8 May, Maastricht, Netherlands), spanning stroke prevention, treatment, rehabilitation and life after stroke. Research that is especially relevant to patients and carers is translated into clear, easy-to-understand educational resources—with each resource being evidence-based, neutral and non-promotional, and shaped by both scientific expertise and lived experience.

“People living with the consequences of stroke want to understand the research that may shape their care, recovery and future,” said Stacie Broek, executive director and co-founder of SHINE. “But, that information is often written for specialists, not for the people it ultimately affects. Stroke Insights brings survivors into the conversation, combining lived experience with scientific expertise so that research is not only understandable, but relevant to the realities of life after stroke.”

Within Stroke Insights, the ESO provides scientific oversight, while SHINE ensures survivor perspectives shape topic selection, content validation and dissemination through survivor communities. According to the ESO, this collaborative approach helps connect scientific knowledge with the real-world questions faced by stroke survivors, carers and families, while supporting the Stroke Action Plan for Europe’s (SAP-E) goals of improved health literacy, meaningful patient involvement and stronger dialogue between science, patients, and policy.

The ESO also notes that Stroke Insights is not intended to replace individual medical advice. Instead, it provides accessible, evidence-based information that can help people better understand developments in stroke science and support informed conversations with healthcare professionals. Additionally, for clinicians and other healthcare professionals, the platform offers a resource that can be shared with patients and families who want to understand the research behind developments in stroke prevention, treatment and recovery.


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