National Stereotactic Radiosurgery (SRS) patient registry gains momentum

922

Brainlab_Logo_Black Brainlab has enrolled 11, to date, of the expected 30 hospitals and healthcare systems in the national Stereotactic Radiosurgery (SRS) Patient Registry.

Launched in partnership with The
American Association of Neurological Surgeons (AANS) and the American Society for Radiation Oncology (ASTRO), the patient registry will gather important patient data, aiming to define national patterns of care in radiosurgery, with an eye to improving health care outcomes, supporting informed decision-making and potentially lowering the cost of care for patients.

To date, the SRS Patient Registry is gathering de-identified data on almost 400 patients at the diverse, high-volume enrolled facilities. The registry logs the de-identified SRS treatment information of patients affected by brain metastases, benign brain tumours and arteriovenous malformations (AVMs). The SRS patient registry is set to prospectively collect data from 30 of the best hospitals in the USA over a three-year period, and under the banner of quality, generate a large clinical database, unlike any other.

“This level of detailed patient data analysis can change the way we look at methods and patterns of care from a both a population database and personalized medicine perspective,” says Brian Kavanagh, Department of Radiation Oncology, University of Colorado School of Medicine, Aurora, USA. “The more patients we upload into the registry, the closer we can approach our ultimate goal of thoroughly understanding SRS best practices so that we can help improve patient outcomes.”

Brainlab transfers treatment and outcome information to the database through Quentry, a web-based image sharing service, which employs advanced encryption and access-control technologies to ensure that all sensitive medical information is secure.

“Over the next two years, all 30 hospitals in the registry are expected to upload thousands more patients,” says Jason Sheehan, Harrison Distinguished Teaching Professor & Vice Chair, Department of Neurological Surgery, University of Virginia Health System (Charlottesville, USA). “In an era of evidence-based medicine, this SRS Registry offers the potential to provide concrete guidelines and process benchmarks that could change patient outcomes on a global scale.”

Current US sites providing patient data via Brainlab Quentry:

  • University of Colorado Hospital, Aurora
  • University of Virginia Health System, Charlottesville
  • University of Southern California Norris Comprehensive Cancer Center, Los Angeles
  • Mayfield Clinic—University of Cincinnati, Cincinnati
  • Jefferson Hospital for Neuroscience, Philadelphia
  • Norton Cancer Institute, Louisville
  • Carolina Neurosurgery and Spine, Charlotte
  • Ronald Reagan UCLA Medical Center, Los Angeles
  • Penn State Hershey Medical Center, Hershey
  • Northwell Health, Great Neck (formerly North Shore LIJ)

By the end of the summer, five additional facilities in the USA are set to begin uploading data to the SRS Patient Registry:

  • Huntsman Cancer Institute, University of Utah, Salt Lake City
  • Yale New Haven Health System, New Haven
  • University of Rochester Medical Center, Strong Memorial Hospital, Rochester

ASTRO and AANS lead the Scientific Advisory Committee charged with providing strategic oversight for the registry. Analysis of the de-identified patient data will be scientifically published, and the fully de-identified data elements will subsequently be made available in the public domain.